G03.9 Adhesive Arachnoiditis in #RAREfest18 Film Festival

Adhesive Arachnoiditis (AA) is an incurable rare disease causing lifelong suffering and pain.
It is often misdiagnosed and is a poorly understood disease. Limited studies have been carried out historically and there is little active research at this time.

A great many patients are left facing a life of severe pain and disability, with little hope of help and support.

Delays in diagnosis, misdiagnosis and a lack of proper care cause avoidable distress and suffering, not only for patients but for all of the patient’s loved ones.

This situation has gone on for too long. We are calling for the medical field to work together to cover gaps in recognising rare diseases like AA and to both identify new and make available existing treatment options.

All patients and families affected by rare diseases need more support from the system; too often we are left to fight alone.

#RAREfest18 #arachnoiditis


Jimmy`s story, arachnoiditis following ESI

Jimmy is a victim of Debo-Medrolin. It´s upsetting that off label use of Depo-Medrol is still continuing. There is no evidence of benefits of ESIs and risks are obvious.

Here is Jimmy`s story



More videos of risks of ESIs you find from the YouTube channel EDNC.

A short overview of Adhesive Arachnoiditis


Sourche, Youtube